Sunday, July 26, 2009
I can handle some peanut butter poop
Benjamin had his swallow study on Friday.
Matthew had to meet me downtown at Children's to go in the room with him b/c I couldn't go in the xray room. LOL
It was confirmed that Benjamin is aspirating when he drinks the thin liquids, but not the nectar consistencies or the solids. They said to keep thickening his liquids to a nectar level for the next nine to twelve months and then come back for another study.
I think the worst part of all of it is that his poop is NAAAAASTY. Because he's not getting anything liquidy throughout the day, his poop has the consistency of peanut butter. It is the grossest thing ever and is very hard to clean.
So I was sitting in the waiting room feeling sorry for myself and then I met a mom. Her son was with her. He is 18 and in a wheelchair. He had casts on both arms. He doesn't talk. I'm not entirely sure what his situation was, but his mom said that he has gotten a cold every month for the past year and a half. They finally did surgery to clean out his lungs. Twenty minutes later, they were full again. They can't figure it out. He was there for a chest x-ray and an upper GI. She said they're talking about giving him a tube. She said that eating is the only thing in his life that gives him any joy. And now he won't be able to do that anymore.
Wow. And I realized that I can handle some peanut butter poop.