So yesterday was a good day as far as Benjamin is concerned. He went another day with no pain medicine. Today he is super mellow but sweet. I fear that perhaps the meds he's on now are making him kind of out of it. But there's nothing I can do b/c he needs them for his heart. He takes three medicines twice a day and then his iron vitamin once a day. He also has some Rx pain medicine in case he needs it. He will hopefully not have to be on these meds for very long; his heart just needs time to heal and these medicines, while they don't help him heal per se, they help his heart not have to work as hard in the meantime while it heals. The stinky part is that one of the meds has to be refrigerated, so if we go anywhere, we have to keep it cold. However, he gets it 7 a.m. and 7 p.m., so we're almost always home then.
Matthew is out on a run this morning. His marathon is less than a month away (Nov 8), so the training is turned up. He's been training since June and today I think he's attempting to run 20 miles. Yeouch.
Andrew is still at my parents' house. I'm not calling them yet b/c they might still be sleeping. Speaking of sleep, I have never appreciated a queen bed more! I always complain that I need a king. But after the faux double in the hospital, I am like a, well, a queen in that bed. Also, I was a little leery that Benjamin wouldn't sleep well now that we're back at home b/c he's had someone waking him up every few hours for a week all day and night. But he slept straight with no disturbances from 9:30 until 7:30. Sweet boy!
Here are some pics from yesterday:
Look, Ma, no wires!
REAL CLOTHES!!
I had to turn him over three times in under five minutes b/c he kept rolling over onto his stomach!
Master Packer
Thanks for all the prayers and well-wishes!! We have loved having all of you on this journey with us. Please continue to stop by and check on us. It might not be as exciting but we'd love to share our life with you.
:)
6 comments:
SO GLAD that you are home!!! Praise God! Thank you for sharing your story with us- and no worries-we will continue to "stop by" and check-in with you. We will also be continuing our prayers for your sweet Benjamin and your family.
take care, and hope to hear from you again soon!
-Jenni
Angela,
Thank God that y'all got to go home. I am so very glad that B rested so well for you last night. I hope that he continues to "IMPROVE". He is one strong little guy. Continue to be positive, as you have done such a awesome job already.:) Thanks so much for sharing your story with us.
~HUGS~
-jessica
YEAH! There is no place like home. I am so happy for all of you! Amy
Hooray!!! You're home!!! As soon as you and everyone else is up to it, we need to get together for dinner sometime. I'll get Kyle to teach you to shag because it's THE MOST FUN!!! I'm so glad life can go back to "normal" now for you. Please let me know if there's anything I can do to help out. If nothing else, we can pull out some Barbies and play!!!
Lots of love,
Melanie
Glad that everyone is safely home. Glad to hear that he is moving well.
The picture without his clothes moved me so much; I know that once he's healed over, it will be a long time (or never?) before you can look at that and not feel something queasy in the pit of your stomach. A friend's little boy had a similar surgery a few months ago, and I know she had trouble reading blogs of other babies going through the same surgery. She wanted to encourage, but it was hard, because she knows all the scary stuff the way only a mommy in that same situation can know. Anyway, I found your blog a few months ago (probably through a comment you left on He Will Carry Me or Bring the Rain or something), and then your cousin, Betty, sent me the link to your blog today. I am sorry I never realized his surgery would be so soon, and missed the chance to be praying for you during that emotional time. I'm glad he's home and well, now, and really enjoyed reading about your family this morning.
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