- We took Benjamin to the cardiologist on Monday for a post-op exam. (This was his local doctor, Dr. Herold.) Benjamin weighed 13lbs, 2 oz. The echo showed that the squeeze on his left side (a concern post-op) still isn't at the optimal level, so he is still on all his medicines. (ARG!) There is still a chance it could improve, but it just needs more time.
- Dr. Herold was a little concerned about the large pneumatacele in his right lung that the heart surgeon discovered during surgery. It was evidently very visible on the x-ray on Monday but Dr. Herold had never seen it before. (I think B's last chest x-ray at Dr. H's office was in July or August.) The pneumatacele is that air bubble that has formed in his lung. It puts him at a greater risk for respiratory infections; he is already at a high risk because of his Down syndrome. Because of this, he is being referred to get synagis shots. This is a series of shots given to at-risk babies (preemies and/or heart babies) once a month from October through March to help prevent illnesses such as RSV. We are praying that he gets approved by insurance b/c they are *very* expensive. If he hadn't had his surgery yet, he'd be approved immediately, but we're hoping the presence of the pneuamatacele will get him approved quickly. He will have to go to a clinic at Children's to get these shots.
- Sigh. Benjamin's poor wrist (where they had to cut to get veins during his surgery) was not closed with enough stitches and is NOT healing well. So they removed the stitches and we're supposed to leave it open and put Bactraban on it. It is going to leave a nasty scar. Poor baby.
- We go to the pediatrician on Monday for Benjamin's six-month well visit. I am bringing Andrew so both boys can get flu shots. (My dad is coming along to take Andrew back to his house after he gets his shot b/c Benjamin and I will be there awhile.) Benjamin, along with his normal vaccines and his flu shot, also has to have his thyroid and hearing checked. The former involves giving blood. Ugh!!! This is the WORST! Down syndrome babies have such thin veins. There is only one RN at our pediatrician's office; the doctor told me that if the RN can't get a successful blood draw from B on the first try, then she will send me to Children's downtown to have the lab do it. I am *really* hoping I don't have to do that! But at least if I do, my dad will have Andrew. Oh, Monday will be a doozy of a day I can tell already.
- We go back to Vanderbilt on Monday, November 3, to meet with the surgeon again. I already know I'm going to be totally nostalgic! Did I mention PIZZA???!?!?!?!?
- On Friday, November 7, we go back to see Dr. Herold. My prayer is that B's heart function has improved and we can start weaning him off his medicines.
- Benjamin will be six months old this Friday. YAY! Happy 1/2 birthday! I suppose I should go get some baby food soon; he's never had anything but breastmilk. Ummm...yeah. And lots and lots of medicines. Oh, and gas drops. Gotta love those!
- Matthew is still training for his first marathon. He runs the Chickamauga Battlefield Marathon on Saturday, November 8. He's so excited, and I'm so impressed! :)
For more updates through pictures, see below:
OH MY GOODNESS--THE FOOD!!!!!!! We have been SO blessed with many friends who have been bringing or sending meals to us. Wow. It has been so, so wonderful. I don't think I've cooked once because we have had so much. This one in particular was so pretty (and yummy) I had to take a picture. Thanks, Mary Anna! (She gets a special shout-out for also bringing a six-pack of bottled Dr. Peppers!! She said she knew I'd like them because she reads the blog. YAY!)
On Saturday, October 18, Matthew took Andrew to the Imagination Station playground for his friend Evan's second birthday party. Poor Evan, his birthday was like a month ago and his party had to be postponed b/c he got sick! Anway, here are some of the kids eating pizza. You can see the infamous Emma (pigtails blowing in the wind) and her sister Ellie (in pink in the Baby Bjorn) on the left. Diana, I just noticed you were wearing flip flops in the cold! LOL
Look at this fantastic Thomas cake from Publix!!
Speaking of cake, notice in this picture, Andrew is eating vanilla cake and there are scads of people at and around the table.
And here, Andrew is eating chocolate cake and everyone else has moved on. This boy LOVES his cake!
The Thomas pinata was a big "hit"! But according to Matthew, the even bigger hit (even more so than the candy that came out of the pinata) was the ribbon that was hanging from Thomas. (Notice in the picture below, Andrew is holding onto said ribbon.) Those pieces of ribbon were carried all over the playground and even brought home, where they had to go in the trash when he wasn't looking. (Our male cat Frank likes to eat ribbons and they are not so kind on his tummy.)
Matthew (who took wonderful pictures at the party, don't you think??), Andrew, and Frank. The first two are ready for church.
LOOK what Benjamin got in the mail today!!! A really cool personalized t-shirt from my friend Amber. Here is the back of the shirt.....
AND THE FRONT!!! How cute is that?!?!?!?!?! Thanks, Amber! I love it!!